Unpacking the Gift of Life
Unpacking the Gift of Life is a place to explore the rare kidney disease and transplant journey with hope and honesty. With your host Valen Keefer, we’re here to connect, uplift, and empower those living with rare disease.
Unpacking the Gift of Life
Hope on the Horizon: How Every Voice Shapes Research Innovation
The future of rare kidney disease treatment is full of hope and innovation. Valen chats with Dr. Jill Green and Dr. Pranav Garimella about groundbreaking research and why the patient voice matters when working with advocacy groups and industry to shape future treatments. Leave feeling inspired and informed about the innovations driving change in rare kidney disease care.
About Your Host
Valen Keefer – Patient Advocacy Leader, Health Educator, & Strategic Consultant, www.valenkeefer.com
Additional Resources
Dr. Pranav Garimella - Pranav Garimella, MBBS, MPH, FASN - Nephrology (Kidney) | UC San Diego Health
Dr. Jill Green - Jill A. Green
PKD Centers of Excellence - Centers of Excellence - Polycystic kidney disease | PKD treatment research | PKD Foundation
UC San Diego PKD Center of Excellence - Polycystic Kidney Disease Care | UC San Diego Health
American Kidney Fund - Join us in fighting kidney disease on all fronts | American Kidney Fund
Rare Kidney Disease Action Network
https://www.kidneyfund.org/rare-kidney-disease-action-network
Unknown Causes of CKD Program
https://www.kidneyfund.org/professionals-and-research/unknown-causes-kidney-disease-project