Unpacking the Gift of Life
Unpacking the Gift of Life is a place to explore the rare kidney disease and transplant journey with hope and honesty. With your host Valen Keefer, we’re here to connect, uplift, and empower those living with rare disease.
Podcasting since 2024 • 12 episodes
Unpacking the Gift of Life
Latest Episodes
Patient-Provider Partnership: The Ins and Outs of Building Your Care Team (Part 2)
Strong relationships with your healthcare team are essential for managing complex care. Valen and her nephrologist, Dr. Adarsh Bhat, explore how patients and providers can collaborate, while transplant recipient Tristan Mace shares tips on mana...
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Season 2
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Episode 4
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36:02
Patient-Provider Partnership: The Ins and Outs of Building Your Care Team (Part 1)
Strong relationships with your healthcare team are essential for managing complex care. Valen and her nephrologist, Dr. Adarsh Bhat, explore how patients and providers can collaborate, while transplant recipient Tristan Mace shares tips on mana...
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Season 2
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Episode 4
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42:57
Care for the Rare: Real Caregivers Share Support Strategies for Rare Kidney Disease (Part 2)
Caregiving is a shared journey. Valen is joined by mother-daughter duo Linda and Autosomal Recessive Polycystic Kidney Disease and Congenital Hepatic Fibrosis (ARPKD/CHF) patient Claire Bevec, along with Valen’s husband Noah, to talk about the ...
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Season 2
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Episode 3
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29:36
Care for the Rare: Real Caregivers Share Support Strategies for Rare Kidney Disease (Part 1)
Caregiving is a shared journey. Valen is joined by mother-daughter duo Linda and Autosomal Recessive Polycystic Kidney Disease and Congenital Hepatic Fibrosis (ARPKD/CHF) patient Claire Bevec, along with Valen’s husband Noah, to talk about the ...
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Season 2
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Episode 3
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39:36
Action in Advocacy: The Patient’s Guide to Finding Your Voice
Advocacy starts with finding your voice. Valen and chronic rare disease patient advocate Swapna Kakani discuss how they discovered their purpose in patient advocacy and offer practical tips for anyone wanting to make a difference. Learn how to ...
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Season 2
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Episode 2
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34:03